As some of you may remember, Alexa was born in 2001, just 7 days after the brutal attack on our Nation. She was born with VACTERL/VATERS Syndrome, which is not very well known. There are very few children worldwide with this syndrome. Because each child has his unique set of anomalies, the chance of survival depends on the organs involved.
A few days after Alexa's birth, she showed signs of blood in the stool, severe stomach reflux, intestinal spasms, and a large hump in her tiny back. Within 3 months is was discovered that Alexa had:
1. Hole in her heart;
2. No hip ball or formed hip socket (she spent over 6 months in a body cast) at 1 year old;
3. 1 kidney;
4. Deformed, missing and fused ribs (Thoracic Insufficiency Syndrome);
5. Deformed and missing spinal vertebrae;
6. Severe scoliosis (so progressive that her spine still tries to crush her heart and lung). This is the struggle to keep her alive.
7. Spina Bifida came later as the spinal nerves became exposed and she had a difficult time walking;
8. A spinal tumor.
A few days after Alexa's birth, she showed signs of blood in the stool, severe stomach reflux, intestinal spasms, and a large hump in her tiny back. Within 3 months is was discovered that Alexa had:
1. Hole in her heart;
2. No hip ball or formed hip socket (she spent over 6 months in a body cast) at 1 year old;
3. 1 kidney;
4. Deformed, missing and fused ribs (Thoracic Insufficiency Syndrome);
5. Deformed and missing spinal vertebrae;
6. Severe scoliosis (so progressive that her spine still tries to crush her heart and lung). This is the struggle to keep her alive.
7. Spina Bifida came later as the spinal nerves became exposed and she had a difficult time walking;
8. A spinal tumor.
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